Navigating Do-It-Yourself Artificial Pancreas System: Developing a DIYAPS-readiness Tool: A Techno-Anthropological Digital Action Research Based on User Perspectives
Translated title
Navigating Do-It-Yourself Artificial Pancreas System: Developing a DIYAPS-readiness Tool
Authors
Rasmussen, Maja Elisabeth Hultberg ; Nielsen, Kristina Contaoi
Term
4. term
Education
Publication year
2024
Abstract
Dette speciale undersøger, hvordan et paratheds-værktøj til Do-It-Yourself Artificial Pancreas System (DIYAPS) kan udvikles sammen med den danske DIYAPS-brugergruppe for at støtte personer med type 1-diabetes (T1D), der overvejer at starte DIYAPS. Projektet udspringer af adgangsbarrierer til kommercielle løsninger og gentagne nybegynder-spørgsmål i fællesskabet Looped - Denmark, og stiller spørgsmålet: Hvordan kan et DIYAPS-paratheds-værktøj udvikles via en brugercentreret designproces, og hvordan kan det understøtte selvforvaltning før opstart? Med en techno-antropologisk aktionsforskningsramme kombineres post-fænomenologiske perspektiver på menneske-teknologi-relationer og self-efficacy som teoretisk kompas. Data blev indsamlet gennem webnografi af den danske online-community, think-aloud test af open source-materiale om DIYAPS, semistrukturerede interviews samt test af værktøjet via interviews; desuden blev et spørgeskema udarbejdet for at udvide input. Syntesen af brugerindsigter pegede på specifikke dele af opstartsfasen, hvor information er vanskelig at finde eller forstå. På den baggrund blev et DIYAPS-paratheds-værktøj udviklet og itereret, som samler forudsætninger, centrale trin og overvejelser og giver opmuntring rettet mod at styrke self-efficacy. Brugernes feedback blev omsat til ændringer. Studiet konkluderer, at værktøjet kan motivere interesserede T1D-personer til yderligere research og bedre planlægning af deres DIYAPS-forløb, og at den deltagerbaserede, brugercentrerede tilgang har forankret værktøjet i communityets behov.
This thesis explores how to co-develop a Do-It-Yourself Artificial Pancreas System (DIYAPS) readiness tool with the Danish DIYAPS community to support people with type 1 diabetes (T1D) who are considering starting DIYAPS. Motivated by access barriers to commercial technologies and recurring newcomer questions in the Looped - Denmark group, it asks: how can a DIYAPS-readiness tool be created through a user-centered design approach, and how can it support self-management before starting? Using a techno-anthropological action research framework, the study combines post-phenomenological perspectives on human-technology relations with self-efficacy to guide design choices. Data were gathered via webnography of the Danish online community, think-aloud testing of open-source DIYAPS materials, semi-structured interviews, and iterative tool testing through interviews; a questionnaire was also created to broaden input. Synthesizing user insights revealed specific points in the start-up phase where information is hard to find or interpret. In response, the authors developed and iterated a DIYAPS-readiness tool that organizes prerequisites, key steps and considerations, and provides encouragement aimed at strengthening self-efficacy. User feedback informed revisions. The study concludes that the tool can encourage interested T1D individuals to undertake further research and better plan their DIYAPS journey, and that the participatory, user-centered process aligned the tool with community needs.
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