Digital storytelling tool in cancer care: The effects of narrative structures on patient engagement in Shared Decision Making
Authors
Christiansen, Yannick Flink ; Karunanithi, Badhumia ; Klein, Cecilie Amalie
Term
4. Term
Publication year
2023
Abstract
Denne afhandling undersøger, hvordan et digitalt fortælleværktøj kan forberede kræftpatienter på fælles beslutningstagning (Shared Decision Making, SDM) forud for deres første konsultation i onkologien. Med udgangspunkt i, at informeret samtykke fortsat dominerer og at patienter ofte ikke kender til SDM eller betydningen af egne værdier og præferencer, udviklede vi en prototype med syv korte, animerede videoer, der forklarede SDM og opfordrede til selvrefleksion. Vi sammenlignede to narrative strukturer i et mellemgruppestudie: Interactive Slideshow (forfatterstyret) og Drill-Down (læserstyret). Otteogtyve patienter blev rekrutteret fra Aalborg Universitetshospital, og 18 gennemførte evalueringen; vi målte self-efficacy og foretrukken beslutningsrolle før og efter brug samt gennemførte semistrukturerede interview. Den kvantitative analyse viste ingen statistisk signifikante forskelle mellem de to strukturer i forhold til self-efficacy eller præference for beslutningsrolle. Kvalitativt vurderede patienter fortælleformatet som hjælpsomt til at forstå og huske information og til at støtte selvrefleksion; nogle oplevede informations-overload og for mange valg og foretrak derfor Interactive Slideshow, som begrænser valgmuligheder. Resultaterne peger på, at digitale fortællinger kan støtte patienters engagement i SDM, og at design af sådanne værktøjer bør afbalancere informationsmængde og valgfrihed med hensyn til patienters mentale belastning.
This thesis investigates how a digital storytelling tool can prepare cancer patients for Shared Decision Making (SDM) ahead of their first oncology consultation. Recognizing that informed consent remains the dominant approach and that patients are often unfamiliar with SDM and the importance of their own values and preferences, we developed a prototype comprising seven short animated videos to explain SDM and prompt self-reflection. We compared two narrative structures in a between-subjects study: an author-driven Interactive Slideshow and a reader-driven Drill-Down. Patients were recruited at Aalborg University Hospital, and 18 completed the evaluation; we measured self-efficacy and preferred decisional role before and after using the tool and conducted semi-structured interviews. Quantitative analyses showed no statistically significant differences between narrative structures on self-efficacy or decisional-role preferences. Qualitatively, patients valued the storytelling format for aiding understanding, retention, and self-reflection; some reported feeling overwhelmed by too many choices and preferred the Interactive Slideshow, which limits decision points. The findings suggest digital storytelling can support patient engagement in SDM and that design should balance information load and choice with sensitivity to patients’ mental state.
[This summary has been generated with the help of AI directly from the project (PDF)]
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