Designing for Reflection in Telehealth: Chronic Obstructive Pulmonary Disease Patients as Self-trackers
Authors
Pedersen, Peder Walz ; Nadarajah, Stephanie Githa
Term
4. term
Education
Publication year
2016
Submitted on
2016-05-31
Pages
15
Abstract
Telemedicinske systemer bruges i stigende grad til tidlig opsporing og behandling af kroniske sygdomme. Alligevel ved vi lidt om, hvordan løbende fjernovervågning – og indsamling af både subjektive data (hvordan patienter oplever deres helbred) og objektive data – påvirker patienters behov og bekymringer over tid. Vi brugte viden fra Personal Informatics, et felt der undersøger, hvordan mennesker indsamler, forstår og handler på egne data, til at analysere interviews med seks personer med KOL (kronisk obstruktiv lungesygdom), der brugte et avanceret telemedicinsk system. Deltagerne følte sig generelt taget hånd om, men systemet levede ofte ikke op til deres behov. De havde blandt andet svært ved at vurdere, hvor pålidelige deres egne subjektive vurderinger var, og systemet gav begrænset støtte til at reflektere over data og beslutte næste skridt. Med udgangspunkt i interviews, arbejdshæfter og design-feedbacksessioner med patienter redesignede vi systemet, så det bedre støtter dataindsamling og refleksion. I en to ugers afprøvning med fem KOL-patienter hjalp det redesignede system den ene af to patienttyper til at blive mere informeret og opmærksom på deres helbredstilstand. For disse patienter førte det til en større oplevelse af kontrol i hverdagen og motivation til at sætte mål og arbejde for at forbedre deres tilstand.
Telehealth systems are increasingly used to detect and treat chronic conditions. Yet we know little about how continuous remote monitoring—and the ongoing collection of both subjective data (how patients feel) and objective data—shapes patients’ needs and concerns over time. We drew on Personal Informatics, a field that examines how people collect, make sense of, and act on their own data, to analyze interviews with six people living with Chronic Obstructive Pulmonary Disease (COPD) who used a state-of-the-art telehealth system. Participants generally felt cared for, but the system often failed to meet their needs. They found it difficult to judge the reliability of their own subjective reports, and the system offered little support for reflecting on the data or deciding what actions to take. Based on interviews, workbooks, and design feedback sessions with patients, we redesigned the system to better support data collection and reflection. In a two-week trial with five COPD patients, the redesigned system helped one of two patient types become more informed and aware of their health status. For those patients, this led to a greater sense of control in daily life and motivation to set goals and work toward improving their condition.
[This abstract was generated with the help of AI]
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Pedersen, Peder Walz:
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