Designing a smartphone application supporting young people living with Rheumatoid Arthritis in consultations with Rheumatologists: A participatory design study
Translated title
Design af en smartphoneapplikation der kan støtte unge mennesker med leddegigt i konsultation med reumatologer: Et participatorisk designstudie
Authors
Nielsen, Alexander Løchte ; Porsborg, Niels William
Term
4. term
Publication year
2015
Submitted on
2015-06-01
Pages
122
Abstract
Formål: Studien undersøger, hvordan man kan udvikle en smartphone‑app, der støtter unge med reumatoid artrit (RA) i deres konsultationer hos reumatologer. Metode: Appen blev udviklet med en deltagende designproces (samskabelse), hvor unge med RA indgik som en del af designteamet. Arbejdet omfattede fokusgruppeinterview, undersøgelser i hverdagskontekster (kontekstuel undersøgelse), en idé- og konceptworkshop samt fælles evalueringer af prototyper. To reumatologer deltog gennem semistrukturerede interview og fælles evalueringer. Det sikrede, at krav og behov fra alle involverede parter blev identificeret og adresseret. Resultater: Unge med RA oplever udfordringer i næsten alle aspekter af hverdagen. Analysen af samspillet mellem patienter og reumatologer peger på en mulighed for at styrke de unges position under konsultationer. Samtidig er reumatologers konsultationstid meget begrænset, hvilket betyder, at en app kun vil blive brugt, hvis den er hurtig at anvende og let at integrere i den eksisterende praksis. Konklusion: En smartphone‑app kan styrke patienters handlekraft (patient empowerment) i konsultationer, hvis den udvikles i tæt samarbejde med alle interessenter gennem hele processen. Appen bør lede brugeren trin for trin (en lineær indtastningsvej) for at fastholde engagement og sikre datakvalitet. Den bør præsentere information så enkelt og genkendeligt som muligt for reumatologen, så den passer ind i de nuværende arbejdsgange.
Objective: This study explores how to design a smartphone application that supports young people with Rheumatoid Arthritis (RA) during appointments with their rheumatologists. Methods: The app was developed through a participatory, co‑design process that included young people with RA as part of the design team. The work combined focus group interviews, real‑world contextual inquiry, a concept workshop, and cooperative evaluations of prototypes. Two rheumatologists contributed via semi‑structured interviews and joint evaluations. This ensured that needs and requirements from all parties were identified and addressed. Results: Young people with RA face challenges across many aspects of daily life. Understanding how they interact with rheumatologists reveals an opportunity to strengthen their position during consultations. At the same time, consultation time is very limited, so any app must be fast to use and easy to fit into existing routines to be adopted. Conclusion: A smartphone app can enhance patient empowerment in consultations if developed in close collaboration with all stakeholders throughout the process. The app should guide users through data entry in a step‑by‑step (linear) flow to maintain engagement and data quality. It should present information in ways that are as simple and familiar as possible to rheumatologists, so it integrates smoothly with current practice.
[This abstract was generated with the help of AI]
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